Call for involvement: Share your experience of HPB Cancer Genetic Testing

Event Description

Have you experienced hepatopancreatobiliary (HPB) cancer testing?  If you have, then we would like to hear from you.

In collaboration with our colleagues within the PPIE team at the NIHR BRC at the Royal Marsden Hospital (RMH), and the Institute of Cancer Research, we are looking for people with lived experience of HPB cancer to take part in a  national Patient and Public Voice (PPV) workshop.

Your insights will help inform future work and ensure that patient experiences are reflected in the development of services and resources.

Who we're looking for
We are particularly interested in hearing from people who have:

  • Personal experience of HPB (hepatopancreatobiliary) cancer, including pancreatic, liver, bile duct or gallbladder cancer; and/or

  • Undergone genetic testing as part of their cancer care or assessment.

Workshop details

  • Online workshop to be held online via Zoom on 30th July 2026 from 4-6pm (joining details will be provided at a later stage

  • An opportunity to share your experiences in a supportive and collaborative environment

  • Discussion on the use of genomic testing in HPB cancers, including benefits, opportunities, and challenges

  • Your feedback will contribute to improving future services and patient experience

  • You will receive up to £75 voucher rewards in recognition of your time, direct from the NIHR BRC (RMH)/ the Institute of Cancer Research.

Register your interest

Please note that, as this workshop is seeking perspectives from people with specific lived experience, we will reach out after your expression of interest to confirm that the workshop is relevant to your experience.

If you would like to take part, please register your interest by Thursday 23rd July:

  • By either emailing patients.engagement@rmh.nhs.uk, scanning the QR code below, or clicking on the booking link, and

  • Explaining your personal experience of HPB cancer

 

What we will do at the workshop

Goals:

  1. Clear PPI statement to support the use case of ctDNA liquid biopsy in HPB cancers

  2. Share their experiences, benefits, opportunities and challenges

 

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Event Details

Event Date

30 July 2026, 4:00 pm to 6:00 pm

Cost

FREE

Categories

  • Patient and public engagement

Event Links

Location

Zoom