Would you like to get involved in the work of the Alliance?
Our vision places the patient and their voice at the heart of everything we do.
We are working to build awareness and trust in genomics within the communities across the North West, providing clinical leadership to enable healthcare professionals to use genomics safely, effectively, and efficiently to embed genomics into routine healthcare, delivering better, quicker diagnosis of rare conditions, and personalised treatments and care for people with inherited conditions and cancer.
As part of our communication and engagement strategy, we want to recruit to our brand-new patient and public panel which reflects the diverse population of the North West of England.
It is vitally important that we hear from all areas of the population across the region including those who may use or may have had cause to use healthcare services but who are less likely to have the opportunity to share their experiences, to inform the work of the Alliance.
How to apply: A copy of our application pack and application form is available below but if you would like to discuss the role in more detail prior to applying, then please contact email@example.com to arrange an informal chat.
We look forward to hearing from you.
Our Patient and Public Voice Panel (PPVP) will help ensure that the views and opinions of patients, carers, and families are at the heart of everything we do, in support of embedding genomics into routine healthcare across our region.
The PPVP will inform discussions and decision-making, and challenge our thinking. The panel will review patient and public-facing communications and be involved in our genomic transformational projects.
The role of the PPVP will and should evolve over time, with a wide range of engagement and involvement opportunities being available to members of the panel. We have already recruited a Chair for the PPVP and we are in the process of recruiting a Vice Chair.
We are interested in hearing from people with lived experience of genetic testing – either as a patient, carer, or family member, within the last two years but we also welcome applications from members of the public without experience in genetic testing but with an interest in improvements in the NHS.
We are particularly keen to have representation from the following groups who are currently under-represented:
- Young adult (18 years +)
- People identifying as LGBTQIA+
- Individuals from minority ethnic background
Ideally, you will live or have received care in the North West of England region, or have a connection with the area. As mentioned earlier, all applications are welcomed.
We have adopted a tiered approach to our PPVP, so that varying degrees of engagement can be accommodated, in line with the individual's spare time and capacity to get involved.
We plan to hold bi-monthly meetings, for a maximum of two hours per meeting. There may be a requirement to read some papers in advance of the meeting and it is likely that there may be occasional electronic communications between the meetngs.
A full description of time commitments is available in our Application Pack, available to download via the link below.
During 2023, we aim to hold 3 meetings, using a hybrid model of attendance to ensure that all members of our panel can attend, i.e. face to face combined with online attendance via MS Teams. Our third meeting will be held in the Autumn and will coincide with our yearly Annual General Meeting (AGM).
These meetings are guided by an agenda with papers circulated before each meeting, as agreed with our Chair of the PPVP and the Communications and PPIE Lead for the Alliance.
If/when travel becomes applicable for members of the PPVP, where a physical presence at a meeting is required, then agreed travel expenses will be reimbursed in line with the NHS guidelines. There will always be an option to join virtually.
This is primarily a voluntary role, with reimbursement of 'out of pocket' expenses paid. NB: Some members of the panel currently work at the 'Expert Advisor' level which is payable, in line with NHS guidelines. For more information, please review the attached Application Pack.
This is currently one year, at which point membership of the panel can be reviewed.
A person specification is available within the Application Pack.