Our newly created Patient and Public Voice Panel (PPVP) has been created for one purpose; to ensure that the views and opinions of patients, carers, and families are central to the work and primary role of the North West Genomic Medicine Service Alliance; embedding genomics into routine healthcare across our region.
The panel will meet quarterly, either virtually or face to face (or a hybrid of the two options). A steering group has been developed which will act as a conduit between the panel and the Alliance, in order to ensure that there is a two-way flow of ideas, feedback, and opportunities to get involved.
Recruitment continues as we want the panel to be representative of the population of the North West and we are interested in hearing from people with lived experience of genetic testing within the last two years but welcome applications from members of the public without experience but with an interest in improvements within the NHS. You may live or have received care in the North West or have a connection with the area.
We are particularly keen for the panel to be representative of the following groups:
- Young adult (18 years +)
- People identifying as LGBTQIA+
- Individuals from minority ethnic background
All applications are welcomed. If you would like to speak to someone to find out more and without obligation, please email contactus@nw-gmsa.nhs.uk
More information and a copy of our application form and application pack is available here.