Our Patient and Public Voice Panel (PPVP) has been formed for one purpose; to ensure that the views and opinions of patients, carers, and families are central to the work and primary role of the North West Genomic Medicine Service Alliance; embedding genomics into routine healthcare across our region.

The PPV Panel collaborates with the Alliance, to: 

  • Ensure patient, family and carer voices are heard at a senior levels within, and inform decision making across the North West GMSA.
  • Discuss openly the challenges and opportunities for genomics in the region.
  • Reflect patient, family and carer experiences and priorities through review and input into our business planning, workstreams,  and the development of genomic services across the NHS.
  • Consider and address barriers to equity of access and experience of services across the region.
  • Raise awareness of genomics and its potential impact amongst patients and the public, and share the experiences of people whose care involves genomics.

Membership is made up of representatives from across the North West and North of England, bringing together a wide range of life experience, including genetic testing.  Currently we have 11 panel members, including our Chair David McCormick.

Join us!

Recruitment continues as we want the panel to be representative of the population we serve, so if you or a family member have:

  1. live in the North West, with lived experience of genetic testing or
  2. received care in the North West, have a connection to the area, or
  3. an general interest in genomics and would like to inform improvements within the NHS, 

then we would like to hear from you,  as all applications are welcomed.  

We are particularly keen for the panel to be representative of the following groups:

  • Young adult (18 years +)
  • People identifying as LGBTQIA+
  • Individuals from minority ethnic background     

Black History Month Hi I'm Angela_V2.pngOne of our panel members recently produced a short article, highlighting why they joined our panel.  To read in full, please visit: Hi, my name is Angela.

If you would like to speak to someone to find out more and without obligation, please email Barbara Coleman, Communications and PPIE Lead, at barbara.coleman@nw-gmsa.nhs.uk 

More information and a copy of our application form and application pack is available here.